Rights Based Standards for Children Undergoing Clinical Procedures

iSUPPORT: International collaborative standards to SUpport Paediatric Patients during clinical prOcedures, Reducing harm and establishing Trust.

We are an international group of health professionals, academics, young people, parents,
child rights specialists, psychologists and youth workers who are all passionate about the
health and wellbeing of children, especially when they interact with healthcare services.

Our group is made up of over 50 members from around the world (UK, Ireland, Jordan,
Indonesia, Cambodia, South Africa, Sweden, Australia, New Zealand, Brazil, Canada, USA,
Spain, Netherlands, Malawi and Korea). See the bottom of this page for details of the collaborating members.

We have been working together throughout 2021 to develop standards for children and
young people (aged 0-18 years) undergoing clinical procedures, based on internationally
agreed children’s rights set out by the UNCRC (1989). The standards aim to ensure that the short and long-term physical, emotional and psychological well-being of children and young people are of central importance in any decision-making for procedures or procedural practice.

The standards have been developed through ongoing and extensive consultation within our collaborative group and with established youth and parent forums. We have also sought wider feedback, input and consensus through an international online survey. This gained feedback from 155 respondents from 18 countries. Those who shared their views included 110 health care professionals working across a range of settings and from 17 different countries, 9 children and young people from 4 different countries and 26 parents/carers from 4 different countries.

The Rights-based standards for children and young people undergoing clinical procedures includes:

Share your views by completing our online survey. (Click the button below)

We are inviting you to share your views about the Rights-based standards to help us work out if they are useful for children, parents and professionals and if there is anything we need to change.

Start survey

Click on the images below to read the right information sheet about the project for you before you start the survey.

Information sheet for parents/carers

Information sheet for professionals

Information sheet for children and young people

CC BY: This license allows reusers to distribute, remix, adapt, and build upon the material in any medium or format, so long as attribution is given to the creator. The license allows for commercial use.

Core team members

  • Professor Lucy Bray, Professor of Child Health Literacy, Edge Hill University, UK
  • Professor Bernie Carter, Professor of Children’s Nursing, Edge Hill University, UK
  • Dr Joann Kiernan, Senior Lecturer Edge Hill University / Learning Disability Consultant Nurse, Alder Hey Children’s Hospital, UK
  • Ed Horowicz, Lecturer in Healthcare Law and Bioethics, Law School, University of Liverpool, UK
  • James Ridley, Senior Lecturer (Nurse Education – Learning Disability), Edge Hill University and National Restraint Reduction Network Steering Group Member, UK
  • Katie Dixon, Expert by Experience, UK

Collaborating team members

Europe

  • Generation R, UK
  • Youth Advisory Council, Ireland
  • KIDS Barcelona, Young People’s Advisory group, Barcelona, Spain
  • Professor Carol Robinson, Professor of Children’s Rights, Faculty of Education, Edge Hill University
  • Dr Anna Simmons, Clinical Psychologist, Alder Hey Children’s Hospital
  • Dr Jennie Craske, Pain Nurse Specialist, Alder Hey Children’s Hospital
  • Stephanie Sinha, Pain Nurse Specialist, Alder Hey Children’s Hospital
  • Dr Liza Morton, Counselling Psychologist / Lived experience, University of Glasgow
  • Dr Begonya Nafria, Sant Joan de Déu Children’s Hospital, Barcelona
  • Associate Professor Maria Forsner, Department of Nursing, Faculty of Medicine, Umeå University, Umeå, Sweden
  • Dr Anna-Clara Rullander, Department of Nursing, Faculty of Medicine, Umeå University, Umeå, Sweden
  • Associate Professor Stefan Nilsson, Institute of Health and Care Sciences, and University of Gothenburg Centre for Person-centred Care, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden
  • Associate Professor Laura Darcy, Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Sweden
  • Dr. Katarina Karlsson, Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Sweden
  • Cath Hubbuck, Senior Play Specialist, Great Ormond Street Hospital, UK
  • Professor Maria Brenner, Trinity College, Dublin, Ireland
  • Sian Spencer-Little, Deputy Lead for Play, Great Ormond Street Hospital, UK
  • Kath Evans, Director of Nursing at Barts Health & Clinical lead for Babies, Children & Young People, UK
  • Professor Andrew Rowland, Honorary Professor (Children’s Rights, Law, and Advocacy), The University of Salford, Salford, UK
  • Dr Carol Hilliard, Assistant Director of Nursing, Children’s Health Ireland (CHI) at Crumlin, Dublin, Ireland
  • Jennifer Preston, Senior Patient and Public Involvement Manager, University of Liverpool, UK
  • Dr Piet L Leroy, Paediatric Intensivist, Pediatric ICU and Pediatric Procedural Sedation Unit, Associate, Professor in Pediatrics, Maastricht University Medical Centre / Maastricht University, The Netherlands
  • Dr Damian Roland, Honorary Associate Professor and Consultant in Paediatric Emergency Medicine, University Hospitals of of Leicester NHS Trust and Leicester University, UK Julie Perkins, Play Specialist, Great Ormond Street Hospital, UK
  • Dr Lisa Booth, Senior Lecturer and diagnostic radiographer, University of Cumbria, UK Jean Davies, Bangor University and Chair RCN Children and Young People’s (CYP) Professional Issues Forum, UK
  • Simon Nielson, Mental health nurse, Research assistant and PhD student, Edge Hill University, UK
  • Dr Holly Saron, Lecturer and Research Fellow, Edge Hill University, UK
  • Stephanie Liddle, Play Specialist, Great Ormond Street Hospital, UK
  • Kevin O’Farrell, Patient Advocacy & Corporate Services Manager, Children’s Health Ireland at Crumlin, Dublin, Ireland
  • Dr Marie Edwinson Mansson, Paediatric RN, HSC, Lund University, Sweden
  • Julie Perkins, Play Specialist, Great Ormond Street Hospital, UK

Oceania

  • Dr Karen Ford, Adj Associate Professor, University of Tasmania and the Royal Hobart Hospital, Tasmania
  • Professor Steve Campbell, University of Tasmania, Tasmania
  • Dr Julie Blamires, Lecturer, Auckland University of Technology, New Zealand
  • Dr Annette Dickinson, Senior Lecturer, Auckland University of Technology, New Zealand
  • Michael Neufeld, Lecturer, Auckland University of Technology, New Zealand
  • Dr. Blake Peck, Senior Lecturer, Federation University, Victoria, Australia

North and South America

  • Dr Marla de Avila, São Paulo State University – Unesp, Botucatu Medical School, Nursing Department, Brazil
  • Professor Fanny Robichaud, UQO, Département de Sciences Infirmières, Québec, Canada
  • Professor Christine Chambers, Department of Psychology and Neuroscience, Dalhousie University, Canada
  • Dr Jennifer Parker, IWK Health, Canada
  • Professor Veronica Feeg, Associate Dean and Director of the PhD Program in Nursing, Molloy College in Rockville Centre, New York, USA

Asia

  • Dr Henny Suzana Mediani, Associate Professor Department of Pediatric Nursing, Faculty of Nursing Universitas Padjadjaran Indonesia
  • Professor Young Mee Ahn, Inha University Korea
  • Dr Lakkena Koung, Medical Doctor (Detox and Rehabilitation Medicine), M’Lop Tapang, Sihanoukville, Cambodia
  • Dr Dim Dora, Medical Program Manager, M’Lop Tapang, Sihanoukville, Cambodia
  • Dr Maha Atout, Nursing School, Philadelphia University, Amman, Jordan

Africa

  • Maureen D. Majamanda, Senior Lecturer, University of Malawi, Kamuzu College of Nursing, Malawi
  • Natasha North, Senior Researcher, The Harry Crossley Children’s Nursing Development Unit, University of Cape Town, South Africa. Twitter: @HCCNDU and @NorthNatasha

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