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Rights Based Standards for Children Undergoing Clinical Procedures

iSUPPORT: International collaborative standards to SUpport Paediatric Patients during clinical prOcedures, Reducing harm and establishing Trust.

*Captions not needed: the only sound in this video is background music. The video is a graphical representation of the content and documents included in this page. The end frame of the video references references following ISupport on twitter @ISUPPORTrights to provide feedback.

We are an international group of health professionals, academics, young people, parents, child rights specialists, psychologists and youth workers who are all passionate about the health and wellbeing of children, especially when they interact with healthcare services.

Our group is made up of over 50 members from around the world (UK, Ireland, Jordan, Indonesia, Cambodia, South Africa, Sweden, Australia, New Zealand, Brazil, Canada, USA, Spain, Netherlands, Malawi and Korea).

We have been working together throughout 2021 to develop standards for children and young people (aged 0-18 years) undergoing clinical procedures, based on internationally
agreed children’s rights set out by the UNCRC (1989). The standards aim to ensure that the short and long-term physical, emotional and psychological wellbeing of children and young people are of central importance in any decision-making for procedures or procedural practice.

The standards have been developed through ongoing and extensive consultation within our collaborative group and with established youth and parent forums. We have also sought wider feedback, input and consensus through an international online survey. This gained feedback from 155 respondents from 18 countries. Those who shared their views included 110 healthcare professionals working across a range of settings and from 17 different countries, 9 children and young people from four different countries and 26 parents/carers from four different countries.

Share your views

We are inviting you to share your views about the Rights-based standards to help us work out if they are useful for children, parents and professionals and if there is anything we need to change.

Core team members

  • Professor Lucy Bray, Professor of Child Health Literacy, Edge Hill University, UK
  • Professor Bernie Carter, Professor of Children’s Nursing, Edge Hill University, UK
  • Dr Joann Kiernan, Senior Lecturer Edge Hill University / Learning Disability Consultant Nurse, Alder Hey Children’s Hospital, UK
  • Ed Horowicz, Lecturer in Healthcare Law and Bioethics, Law School, University of Liverpool, UK
  • James Ridley, Senior Lecturer (Nurse Education – Learning Disability), Edge Hill University and National Restraint Reduction Network Steering Group Member, UK
  • Katie Dixon, Expert by Experience, UK

Collaborating team members

Europe

Oceania

North and South America

Asia

Africa