Kanatas A, Lowe D, Velikova G, Roe B, Horgan K, Shaw RJ, Rogers SN. Issues patients would like to discuss at their review consultation in breast cancer clinics – a cross-sectional survey. Tumori. 2014 Sep-Oct;100(5):568-79. doi: 10.1700/1660.18184.Abstract
Aims and background:
In breast cancer (BC) there are different therapies available with different side effects affecting the health-related quality of life (HRQOL) of patients. Here we report a novel tool, the BC-specific Patient Concerns Inventory (PCI). This work includes a survey that is part of the validation process to allow a larger cohort and comparisons with clinical characteristics. We report the concerns that BC patients would like to discuss in the outpatient clinic – using the PCI – and also their choice of multidisciplinary team members they would like to see.
Methods and study design:
We carried out a cross-sectional survey – using the BC-specific PCI, the EORTC QLQ-C30 and the EORTC BC QLQ-BR23 – of patients who had completed their initial treatment and were attending a review outpatient clinic. 249 patients were recruited from February to July 2012. Results. Survey responses were obtained from 80% (200/249). The three most frequent items were fear of cancer coming back (62%, 124), breast sensitivity/pain (46%, 92), and fatigue/tiredness and low energy levels overall (46%, 92). The most frequently selected members of the multidisciplinary team that patients wished to see were the breast care nurse (46%, 92), the medical oncologist (28%, 55) and the psychologist (20%, 40).
The PCI provides the opportunity for multiprofessional engagement across a range of issues specific to BC. It can identify issues relating to physical, psychological, sexual and social functioning, as well as issues relating to body image and lifestyle.