Researchers from Edge Hill University have been funded by the NIHR Health Services and Delivery Research Programme (HS&DR) to investigate respite care and short breaks for young adults with complex healthcare needs due to a life-limiting condition and/or physical disability. Read further about the NIHR Health Services and Delivery Research.
Carers’ Alert Thermometer (CAT)
The CAT is an evidence-based alert tool designed to identify and triage the needs of people who are providing support to a family member or friend at home as an unpaid carer. Originally developed for use with unpaid carers providing end of life care at home it is now being used with carers who are providing support to patients with a range of long-term and progressive conditions, as well as those receiving palliative and end of life care. Read further about the Carers’ Alert Thermometer (CAT).
The Patient Concerns Inventory
The Patients Concerns Inventory (PCI) is a simple tool to help patients highlight their concerns and needs for discussion in their clinical interactions / consultations. The premise is based on the literature around question prompt lists. Initially designed for head and neck cancer survivors in an outpatient setting it is now being developed for use in a wide range of clinical settings. Developed by Professor Simon Rogers (Edge Hill University and Aintree University Hospitals NHS Trust), and in close collaboration with patients, the PCI improves consultations, targets symptoms, facilitates referrals and improves patient care. Read further about the The Patient Concerns Inventory (PCI).
Prof Sally Spencer and Dr Carol Kelly coordinate research predominantly in long-term chronic respiratory conditions.
Asthma is a condition characterised by inflammation of the airways and affects 300 million people worldwide, in up to 16% of the population (GINA 2017). Its prevalence and management in the prison system are unknown and we are supporting research exploring this question.
Chronic Obstructive Pulmonary Disease (COPD) is a degenerative airways disease largely associated with smoking, which affects 384 million people globally, around 11% of the population, and attributable to 1 in 3 deaths in the US alone (GOLD 2018). We are supporting research investigating the causes of poor adherence to pulmonary rehabilitation and the role of behavioural change techniques in exercise rehabilitation.
Bronchiectasis is characterised by chronic infection and permanent dilation of the airways. It is a relatively under-researched condition but recent reports estimate a prevalence of 53 to 566 cases per 100 000 people (Polverino 2017), giving a global estimate of up to 2 billion people affected worldwide. Antibiotics are the main treatment for this life-threatening condition and we are reviewing the evidence base for these treatments in in a series of Cochrane reviews. In addition, following completion of a Cochrane review of self-management for bronchiectasis, we are developing an intervention to help people manage their condition at home.
Acute Respiratory Infections are common, especially in winter months and many people are prescribed antibiotics to eradicate the infection. However, these are only effective for bacterial infections and it is important that prescribing practices are well managed in the face of rising antibiotic resistance (O’Neill 2016). In collaboration with an out-of-hours urgent care service we are evaluating the feasibility and acceptability of a point-of-care test for bacterial infection that has the potential to inform antibiotic seeking and prescribing behaviour.
We work with a broad range of respiratory clinicians and other academics, both nationally and internationally. Dr Kelly is Chair of the RNRC (Respiratory Nurse Research Consortium), a collaborative venture between ARNS (Association of Respiratory Nurse Specialists) & the Postgraduate Medical Institute (PGMI) at EHU. This organisation champions and supports respiratory nurses to lead research and has just published the findings from a Delphi survey which identified consensus research priorities for respiratory nurses.