Participation


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Our focused work on participation

Our focus within this domain is on promoting participation in society with a particular interest in children, pregnant women and young people’s participation in decision making and in promoting access to services. Our studies encompass young offenders, children with intellectual disability, families who have a child with disability and children with pain. We have also worked with pregnant women and midwives to improve understanding regarding healthy eating and weight management advice offered/received during pregnancy.

We are actively involved in Patient and Public Involvement (PPI) with particular depth of interest in PPI with children, young people and pregnant women.

The key people working in this domain from the Faculty of Health, Social Care and Medicine are Professor Bernie Carter, Professor Lucy Bray, Dr Julie Abayomi,  Dr Joann Kiernan, Dr Sean Creaney, Toni Bewley and members of the Service User and Carer Council.

The ‘Fit for Birth’ study (Dr Julie Abayomi) gathered evidence to support guidelines for weight management and healthy eating during pregnancy for pregnant women with a BMI > 35kg/m2.

The CASTLE study focuses on children with rolandic epilepsy and Professor Lucy Bray and Professor Bernie Carter are leading the family engagement work and the qualitative research components.

Key to our work is our commitment to advancing children’s participation in research. We are active in developing and using inclusive, arts- and technology-based approaches to promote the participation of children and young people in a wide range of studies and in using performance-based approaches to dissemination. Beth Gibson’s work with children about the acceptability of children’s medicines is highly participatory in its approach.

Our participatory work with young people with scoliosis has resulted in the development of the Coming to Spinal Clinic resource. We have also developed a resource about the assessment of pain for children with complex health care needs called Communicating Lily’s Pain.

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