Can participative research emerge from “non-participative” settings? Negotiating community connections and collaborations in health research.
Health research projects are commonly planned and funded within a primarily instrumental context often with a central aim of providing solutions to problems of health challenges and health management. Since the 1990s “Patient and Public Involvement” (PPI) in research has increasingly been seen as needed to legitimise the choice of funded topics, the acceptability of research methods to potential research participants, the wider recognition of research findings as valid and the accessibility of findings for stakeholder groups. However, the history and dynamics of this field of work may provide different ingredients for enabling and facilitating the research participation of PPI actors. Fiona has had many years’ experience of seeking areas for community collaboration in health and social care research. She will consider these issues in relation to three diverse examples of funded research involving different purposes, methods, points of partnership between community groups and research project workers and commissioners: a Big Lottery-funded pilot for an ME/Chronic Fatigue Syndrome Research Observatory; a long-term evaluation of the Ipswich/Suffolk prostitution strategy set up in the wake of five murders of women in 2006; an action research project in an acute hospital to increase the relevance of pre-surgery education for patients and carers before surgery for colo-rectal cancer. Fiona will argue that constructing community participative approaches needs to actively draw on and to negotiate within the resources and expectations which condition the actualities of research production.
5.30pm – Registration and Refreshments
6.00pm – Lecture
7.00pm – Refreshments and Networking
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