Communicating Lily’s Pain: parents and professionals working together

‘Communicating Lily’s Pain’ was developed with parents of children who have profound cognitive impairment and complex health needs. This resource aims to help parents and health professionals assess pain in children like Lily. This resource has been endorsed by the Royal College of Nursing.

Our resource is free to download and use. It is made up of:

What do you think?

We would really like to know what you think about the ‘Communicating Lily’s Pain’ resource. Please fill in our quick 2 minute survey and let us know.


The ‘Communicating Lily’s Pain’ resource is being shared with specialist children’s pain teams, other health professionals, people delivering education to health professionals, parents, pain networks and charities.

We are grateful to funding from WellChild for supporting the creation of this resource.

Wellchild Official Purple Logo
Royal College of Nursing Official Logo

For more information, please contact Professor Bernie Carter on bernie.carter@edgehill.ac.uk

Bernie Carter, Rob Young and James Munro

This resource will be reviewed in 2023.

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